1 Purpose and scope
This policy governs support requests from people with congenital heart disease and their families within the Association’s purposes, licence and available resources. It covers permitted treatment-related, social or awareness support. The Association is not a treatment provider and does not guarantee medical approval or unlimited funding. (1)
2 Eligibility and documents
The case officer verifies that the request falls within the target group, identity or legal representation is valid, medical or social need exists, and financial capacity and other coverage have been assessed. Requests for treatment funding require a recent report from a licensed provider, a cost quotation and a treatment plan to the extent needed for assessment.
Missing information is distinguished from ineligibility or suspicion. Applicants are told what is needed, why, and how to submit it securely. A lawful alternative is provided when digital channels cannot be used. Consent to photography or publicity is not a condition of assistance.
3 Assessment and priority
The competent medical reviewer assesses need and urgency using approved documents; the social researcher assesses the funding gap, impact and alternatives. Priority is supported by reviewable reasons, including risks from delay, inadequate coverage and available restricted resources.
Unapproved income limits, assistance ceilings or medical scores must not be used. A new clinical criterion is recorded as requiring an approved medical reference and is not used until approved. Family relationships, membership or previous donations do not confer improper preference. (2)
4 Decision and commitment
A complete recommendation is submitted to the Committee or Board within its authority. It states acceptance, rejection, further information, referral or partial support, with reasons, amount, validity period and conditions. No binding promise is communicated before the competent decision. Interested persons recuse themselves, and this is recorded.
Without an established delegation of financial decision-making to the Committee, its recommendation remains for the Board. Limits and signatures remain subject to the authority matrix, budget and permit. Emergencies are directed immediately to appropriate emergency care, without waiting for the administrative funding process.
5 Payment and follow-up
Direct payment to a verified service provider is preferred, according to the contract, invoice and support decision. Duplicate funding of the same cost is prohibited. Delivery is verified and actual payments matched against approval. Increased costs, changed treatment or refunds require a new decision when necessary.
The case officer monitors access to the service and its impact without interfering with the doctor’s decision. Health and financial data remain access-restricted. Donors receive aggregate reports; beneficiary identity is disclosed only on a lawful basis, for a legitimate purpose and to the minimum necessary extent.
6 Closure and appeals
Cases are closed with evidence of the service, payment, reconciliation and outcome. Applicants are informed how to appeal under the complaints policy. Where possible, a person or body uninvolved in the dispute reviews the decision. Complaints must not result in retaliation or exclusion from a later eligible application.
References in the approved document
- The Association’s approved 2026 Articles of Association, Articles 4 and 5 on its objectives and target groups, and Article 20. This document sets internal implementation controls without changing a higher-level legal requirement or competence.
- Federal Law No. 3 of 2021 and its Executive Regulation; applicable permit, grant and donation restrictions. This document sets internal implementation controls without changing a higher-level legal requirement or competence.